I am talking about databases and notebooks now.

Collect and cross-reference everything.

Initiate – You must begin the search for information and clarification. You must decide what your questions and needs are and pursue them.

Investigate. – Use 3D and virtual library  resources and makes sure they are the most credible and peer-reviewed that you can find.

Interrogate. – Ask questions.

Annotate. – Take lots of notes on what you learn, how you feel, who you've talked with professionally, your tests, your results, your procedures, your treatments, and your activities.

Collaborate. – Join groups of fellow travelers. Compare notes. Share experiences. Share resources. Listen and learn. Share and help others.

Negotiate. – There may be more than one approach to the treatment you need. You need to discuss your options fully with your doctors.

Participate. – Do this fully in your care, in decision making, and in keeping track of your data. Do not depend upon anyone else to keep your records up-to-date. Check and double check the patient portals where you get your treatment.

Appreciate. -Be grateful for the people on your team – doctors, nurses, technicians, care-givers, family, and friends who are helping you manage your medical journey.

No one physician can specialize in everything about your particular body. There are not enough hours in a week. You are unique and you are your own primary care coordinator.

This is a bit off the path of my usual topics, but I felt that it might be helpful to someone and being helpful is my primary purpose here.